Itzy Bitzy

My sister- in- law is now offering a free product to bloggers who put her logo on their pages, you also get buy on get one on a pair of shoes! I love all her cute little flowers, hats, and shoes! So click on the link to the right, and read how to put it on your blog!

I don't know if I've ever blogged about her daughter Sydney, I know I put stuff on facebook, so here's a little update on her.
Sydney and Brooke were born in May of 2005. Sydney was born with Treacher Collins. Her face did not develop properly. Some of the noticeable deformities she had were no eye lids, no cheek bones, and her jaw was so little it would push her tongue up and back which would suffocate her. She was hooked up to all kinds of machines and life flighted to Las Vegas where we met her at Sunrise hospital. Darrell and I were there with my MIL, and my BIL Jimmie (her dad) came shortly after Syd arrived. All of us had different feelings when we saw her. She hadn't been diagnosed yet- and the nurse told Michelle she would probably die, she told her she was most likely missing major internal organs. All this was said to Michelle as she said goodbye to her sweet baby, since she had to stay in St. George to recover and wait for Brooke to gain enough weight to be released. Michelle told us that, so when waiting for Syd to arrive at the hospital was very emotional. I had just had Carly 4 and a half months before- I was so worried about this little girl we were about to meet. When Syd got tho the hospital, we were brought in to see her. I remember this HUGE feeling of relief wash over me. She was a perfect little girl who had a few facial deformities. Her cute little ears- I remember her little sunglasses protecting her eyes, I was a little sick to see all the tubes and machines though. I had never seen a baby hooked up to so many things- I just wanted to hold her and kiss her. After many surgeries, a tracheotomy, skin grafts to make eye lids, feeding tube in her tummy, and many other ones, she was able to come home from the hospital at 4 months. We went to visit shortly after and the girls fell in love with Syd! The kids had never seen her, Syd was always in the NICU and kids can't go in. We had explained to them that Syd looked a little different but she is just like any other baby- she loves to be held, and just wants to play. Michelle emailed us a few pictures of her so the kids knew what she looked like, they never were scared of her, they just wanted to play with her, and of course learn all about her trache and feeding tube.

Twins first Halloween

Ashlee and Syd

Carly and Brooke

Carly had so much fun with the girls when they came out for Lexi's baptism last year!

Syd has had so many surgeries! She is a trooper! Here are a few pictures from her jaw extension, and when they put cadaver in to make cheek bones for her.

Here is what she looks like since the swelling went down

I wish we could see her more often- not just her, her whole family! Syd is a fighter, she doesn't let anything stop her. She knows how to suction her trache, she signs for communication, and she doesn't let her sister Brooke push her around!

Love this little girl!